Events

Each year, FD NOW hosts several events, including two annual events; an on-line auction and a golf outing. 

If you love planning events, we’ve got opportunities for you!  Whether it’s donating auction items, rallying event co-sponsors, or writing press releases, your involvement will help make a positive impact on the life of someone with FD.  Come join us in planning future events by sharing your expertise! 

Here’s a line-up of our annual events and a sample of a few past events: 

FD NOW On-line Auction Fundraiser (annual)  - In winter, over 300 people log on to browse, shop, and vie for over 200 fun, functional and trendy items including state-of-the-art electronics, swanky jewelry and practical gift cards. This entertaining 10 days of excitement raises close to $20,000. 

Join us next year on March 4-14, 2011 for our 4th Annual FD NOW On-line Auction Fundraiser.  Provide us with your current e-mail address to ensure your participation.

David Z. Herman Memorial Golf Classic and Gala Dinner (annual) - In spring, donors dust off their golf clubs and gather together in Oceanside, NY to benefit FD NOW. The event attracts over 100 golfers, brings together over 200 dinner guests and raises over $100,000. The day-long fundraiser memorializes David Z. Herman, whose 5-year old granddaughter is afflicted with FD.  At dinner, Drs. Rubin and Anderson present an update from the Laboratory for Familial Dysautonomia Research at Fordham University in New York. This is followed by a raffle drawing and silent auction. David’s granddaughter, along with hundreds of others with FD, continue to benefit from this lab’s discoveries, which include two natural compounds and a nutritional regimen.

Join us June 17th, 2010! Provide us with your mailing address to ensure you receive an invitation to this heartfelt event.

FD NOW "Deals to Heal" Garage Sale Fundraiser - On June 25-26, 2010, 9am-3pm at 1170 Green Knolls Drive, your favorite treasures await your discovery.  Come explore a motherlode of fabulous items including accessories, knick-knacks, housewares...and much, much more!       

Stevenson High School SpiritFest (past)  - In 2009, the National Honor Society at Stevenson High School, Lincolnshire, IL hosted SpiritFest, a fun-filled day of carnival attractions, live music and delicious food.  The event was capped off by a 5K walk around the high school campus.  The students raised $21,000. 

Stern College for Women Basketball Team (past) - Raising about $1,000, these NY ladies caught "nothing but net" for a 2009 fundraiser benefitting FD NOW!